That Is Not My Family

December 21st, 2011 No comments »

Yesterday I was baking cookies for Isaac’s first grade class cookie exchange.  As I was adding all the sugar cookie ingredients to the bowl, childhood memories flooded my mind.  I had baked these same cookies with my mother for Christmas as a kid.  Even as a child, I looked forward to making Christmas cookies with my children.  Instead my stomach was in knots.  I was trying to make these cookies without letting Nathaniel get in the kitchen and taste them since he is on the Specific Carbohydrate Diet.  All those ideas of baking sugar cookies with my kids flew out the window.

That is not my family.

I see families all around me going out to dinner at restaurants or going grocery shopping together.  It is those everyday mundane activities that you never thought would be so challenging.  What has gotten me choked up before are those Disney World commercials.  (I don’t know why because I am not particularly a big fan of Disney World.  We also do not have TV but I saw a commercial once and it is branded on my brain.)  It is just the contrast of other families as they show their family videos of them breaking the news to their kids that they are going to Disney World and they just pack-up and go.

That is not my family.

I can easily get caught up in the “that is not my family” syndrome.  Believe me, I allow this to happen more than I would like.  We recently were at our annual church family retreat.  Every year the whole church goes to Lake Swan Camp and we have Bible studies and fun activities for everyone over a coarse of 3 days and 3 nights.  It is here that I struggle a lot with “that is not my family” syndrome.   I was pregnant with many of the women when I was expecting Nathaniel.  I had daydreamed about our children growing up together and playing with each other.  Many times I end up in tears about the “what if’s” and feeling sorry for myself because that is not my family.

This time at the retreat God spoke to me.  I had a vision of me standing at a fence looking out, desperately wanting and thinking I should be on the other side.  He told me, “That is not your  family.  Stop looking out and turn around and see how free you are.”   It was like a heavy weight had been taken off my shoulders.

Do not get me wrong, I LOVE my family.  I am proud to be Ryan’s wife and Nathaniel, Isaac, Noah & Joseph’s mother.  It is just that I had ideas of family activities we would do and how we would function together as a family.  I had determined what my family was going to look like long before I even had a family.  How silly of me.  God is defining my family.  Each member was specifically placed in this family to help build each other up and to help us to become who Christ is calling us to be.

So let me tell you about my family.

We are figuring out  what works for us.  I am not exactly sure what our family will look like in the years to come but time will tell.  While we may not be baking sugar cookies together for Christmas, we are baking pecan flour cookies.  Ryan mentioned of roasting marshmallows  in the fireplace with the boys so I will be making SCD marshmallows!   We are setting up family traditions that work for our family rather than trying to keep the traditions that are not practical for the WHOLE family.

You will not catch us at Disney World anytime soon.  That is not the “happiest place on earth” for us.  It would be quite the opposite.  You will probably catch us playing the Kinect on the weekends as a family instead.  That way we can all go bowling or do track & field and have a good time.  All of this is to say, I am trying to look around and see what works for our family rather than have our family fit a particular mold.  This is love for my whole family.

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Some new videos of Nate

September 19th, 2011 1 comment »

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This Dad Rocks!!

June 19th, 2011 1 comment »

I continually see stories about mother’s helping their children with autism.  They truly are making a difference; there is no doubt about it!  What I do not see often enough are stories about all the amazing dad’s out there.  So I thought I would tell you about an amazing dad that I happen to know very well.  :)

Ryan has been such a wonderful support to our family & me.  His loving support pushes me on to trying new things to help Nate.  WE are recovering our son from autism.  There is no way I could not do it all on my own.

There are times that I feel beat down.  Those days that Nate is very OCD (circle sprinkler, fan sprinkler, system sprinkler…you get my point) and it seems like progress is moving like molasses.  (This is mostly due to being with him all the time and forgetting how far he has come.)  Ryan understands this and he immediately offers to watch the kids so I can get out of the house.  I know that may sound like a little thing but it is HUGE.  Before you know it I am ready to hear about sprinklers all day long and Ryan (after a long day at work) is building sprinkler systems just for Nate in the backyard.

When Nate bangs his head at night, Ryan, will get up and rub his head and pray for him.  (Nate does not bang his head as much as he used to but it still happens every now and then.  We still do not know why.)  He never is upset to be woken in the middle of the night but is more concerned about Nate’s well being.

If I read some research on autism and think we should try something or go a particular direction then he supports me.  He wants to learn why and wants to get educated himself.  I still love it when he explains how the Specific Carbohydrate Diet works.  Don’t even get me started on when he talks about the difference between mono-saccharides and polysaccharides.  (I know, I am a dork.)

One of the best things about Ryan is that he continually is reminding me of the BIG picture.  This is just a season.  Today he may be stuck on “sprinklers” but tomorrow it may be “fans”. ( Haha!)  He has made me laugh no matter what the day has brought and he has helped me to dream when I was afraid to dream.  He has been a wonderful husband, father (of soon to be 4 boys!), lover, friend and teammate that I could have ever asked for.

Thank you, Ryan, for all that you have done for our family.  You still continue to amaze me.  I love you.  Happy Father’s Day!

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New IgG Food Sensitivity Test Results

May 4th, 2011 1 comment »

We recently did another 96 food panel IgG Food Sensitivity Test (www.foodallergy.com).  The first test was done back in May of 2009.  So it has been close to 2 years since we retested and have had Nathaniel on the Specific Carbohydrate Diet.  Before I give you the results, let me explain why we did the IgG Food Sensitivity Test.

There are several different types of allergic reactions.  Many people are aware of IgE allergies.  IgE is responsible for the classic response for allergens. (Itchy nose and eyes, cough and for more severe cases can lead to anaphalatic shock.)  IgG  allergic reactions can immediately occur after eating offending foods but can also occur 2 to 3 days later making it difficult to determine which foods are affecting you or your child.  Your body can actually make IgG antibodies to different offending foods.  So every time you consume that food you may get headaches, brain fogginess, diarrhea, stomach aches….you name it!

Nathaniel is affected by food!  There is no doubt.  I always refer to the movie “Gremlins”.   If he gets the wrong foods he becomes a different boy.  He will start head banging, climbing walls, running in circles all while making very interesting noises.  We especially noticed this with eggs.  The crazy thing is he CRAVED eggs!  If he craves anything I am now more cautious to seeing how he reacts after eating those foods.

So here are the results: ( 3 star (very sensitive) to 1 star (low sensitivity). OLD 2009 Results in RED & 2011 Results in BLACK.

Apple  *

Blueberry *

Cottage Cheese  *

Chicken *

Swiss Cheese  *

Coconut  *

Oregano  *

Egg White  ***

Peanut  *

Egg Yoke  ***

Black Pepper  *

Garlic ***

Baker’s Yeast *

Ginger  **

Brewer’s Yeast  *

Gluten *

Cow Yogurt  *

Cow’s Milk  **

Oat  *

Peanut *

Black Pepper  *

Rye  *

Sesame  **

Strawberry *

Tuna  *

Wheat  *

Baker’s Yeast  *

Brewer’s Yeast  *

Yogurt  *

As you can see, he has a lot less food allergies than he used to have.  If you have not performed an IgG Food Sensitivity Test on your child then I would highly recommend it!  It is quite inexpensive even if it is not covered by your health insurance.  It generally costs around ~$100 when done through www.foodallergy.com .  Shop around and find the best price!  It also only requires a small sample of blood.

Hope this helps and encourages you and your family as you are on the road to recovery for your loved one!

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March 20th, 2011 No comments »

“Dancing Like Fools for Nathaniel” Autism Charity & Dance



Enjoy dancing, complimentary desserts, and live music by Tallahassee’s own ACME Rhythm & Blues band.

Friday, April 1st

7:30 pm to 11:30 pm

At the, American Legion Hall, 229 Lake Ella Drive

The cost is $10 per person

For more information contact Rachel at  FindingNathaniel@gmail.com

There will be several items to win at the Silent Auction and through the Chinese Raffle

(Ex. 3 Passenger Scenic Helicopter Ride, a night stay at a beautiful B&B, Day Spa Gift Certificates)

A percentage of all the proceeds will benefit Nathaniel’s “Intensive” Therapy program at the Autism Treatment Center of America.

The remainder of the proceeds will go towards scholarships to help other children with autism.

All donations are tax deductible through Helping Hands-Conquer Autism Now (HH-CAN).

Any donations can be made out to HH-CAN and mailed to:

Ryan Peck

1906 Buford Blvd Ste 3

Tallahassee, Fl 32308

FindingNathaniel@gmail.com

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Become A Sponsor

March 11th, 2011 No comments »

There is a way to overcome Autism and it is helping kids every day.  The solution is the Son-Rise program.  The program is an intensive, home based therapy program for autistic children.  It works, Nathaniel is improving every month but the cost is high and we need help.  For details please visit www.son-rise.org

In cooperation with Helping Hands – Conquer Autism Now (HH-CAN) we are holding a special April Fool’s Day event to raise money so Nathaniel and other autistic children can experience this life-giving program.  The event will be a dance held at the American Legion Hall on April 1st from 7:30 pm to 11:30 pm and will feature Tallahassee’s own ACME Rhythm and Blues band.  We will also be conducting a silent auction, a Chinese raffle, and will be serving complimentary home-baked desserts.

The money raised at the event will go towards an “Intensive Therapy Training” program held at the Autism Treatment Center of America.  We will be flying Nathaniel along with 2 of our top volunteers to Sheffield, Massachusetts to receive this training with us.  We will receive hands-on training 8 hours each day for 5 days at the Autism Treatment Center of America.  True to the programs name; it is a very intense week of training.  We are hoping to raise $15,000.  This will cover Nathaniel’s tuition as well as the travel expenses for Nathaniel, his parents and his volunteers.

HH-CAN! (Helping Hands- Conquer Autism Now) has agreed to establish a special account for Nathaniel.  HH-CAN was created to help lessen the financial burden of families with autistic children by providing scholarships for medical and educational purposes. Sponsorships and other donations can be designated for the benefit of Nathaniel.  When these are designated, a percentage of the funds will be set-aside for Nathaniel and the remainder will be placed in a fund to help other autistic children.  All donations are tax deductible.

There are many benefits to you sponsoring this event.  There are four levels of sponsorship available:  We hope one is right for you.

Platinum  $500

  • A personalized appreciation plaque awarded to your business at the event
  • Business name or logo displayed on a banner at the event
  • Business signs or literature displayed on sponsor table
  • Sponsor name listed in the event program
  • 4 event tickets

Gold    $250

  • Business name or logo displayed on a banner at the event
  • Business signs or literature displayed on sponsor table
  • Sponsor name listed event program
  • 4 event tickets

Silver   $150

  • Business signs or literature displayed on sponsor table
  • Sponsor name listed on event program
  • 2 event tickets

Bronze  $75

  • Sponsor name listed on event program
  • 2 tickets to the event.

Will you help us defeat Autism in Nathaniel and others?  These past two years he has shown immense progress and we are ready to take his therapy to the next level.  Please view the progress Nathaniel has made on this website.  For any questions or concerns, please contact us at FindingNathaniel@gmail.com.

Any donations can be made out to HH-CAN and mailed to:

1906 Buford Blvd Ste 3

Tallahassee, Fl 32308

FindingNathaniel@gmail.com

Nathaniel's current Son-Rise Team

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“Where The Wild Things Are” post by volunteer Ciara

December 6th, 2010 No comments »

I have come to find that my greatest challenge in the playroom is keeping up with Nate’s big imagination. Nathaniel reminds me of Max from the children’s book, Where The Wild Things Are by Maurice Sendak. When things don’t go Max’s way and he gets sent to bed without any supper, he chooses to escape to a wonderful new world that is sparked by his imagination. In this world he meets some very unusual creatures that he has to defeat. After Max stares into the eyes of the monsters and blinks once, he conquers this new land and becomes the King of all the wild things. When Max feels lonely he decides to go back home only to find that his dinner is still hot!

Nathaniel has a huge advantage over Max, because Nate gets to go to this wonderful place every day in the playroom. He uses this incredible creativity to escape from his surroundings, and with it discovers new games and adventures in every session. His amazing imagination takes his volunteers to the extraordinary worlds that he creates. Anything can happen when we step into that room, and when we go together it makes it much more fun! One day we might furnish the whole floor with a ‘carpet’ made out of random blankets, and the next day we might spin like a giant tornado for hours on end. Letting our imaginations run wild anything can happen, and the progress we make when we are being creative is amazing.

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“Nate Knows Numbers” by our amazing volunteer, Sally!

November 7th, 2010 No comments »

Last week in the playroom as Nate was eating his “Hamburger and fries” (Turkey and butternut squash) at the table, sitting on a red chair, I was showing him Isaac’s new Star Wars alphabet book. He asked for the number puzzle from the session prior. After getting it down and removing the puzzle piece numbers 0-9 Nate revealed his knowledge of numbers by identifying the ones I held up. We did this several times. Very cool! Nate knows numbers!

After our team meeting I chose a new personal playroom goal, helping Nate identify the first letter of his name, “N” for Nate. After the session today I’ll have to pick a new goal. I cut an N out of construction paper and Nate identified it correctly without a prompt. Nate knows N! Today he also identified the number 14 from a card.

What other goals should I work toward with him? If my role in the playroom is this clear then what do I do first? There are so many choices. Do I teach him T for tornado or do I try and get him to spell dog D-O-G. We have so much work to do for this young boy and yet each little revelation that our therapy is working leads us to ask ourselves what goal we should pick next. I am showing him the world a piece at a time, which part do I show him first?

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I Scream, You Scream, We All Scream for Ice Cream!

November 6th, 2010 1 comment »

Ryan & I recently enjoyed a weekend getaway together in Apalachicola, Florida.  While we were there we wandered into a bookstore.  I could not resist reading part of a book mentioning goat milk.  I know I have posted about goat milk earlier but I learned even more so of coarse I have to share.

Goat milk is wonderful for people with mal-absorption issues due to it’s fatty acids composition making the milk a lot easier to digest.  Goat milk also has wonderful anti-fungal and antimicrobial properties.  This is due to its relatively high amounts of lauric and caprylic fatty acids.

We immediately decided that we were going to get him to drink goat milk when we returned from our getaway.  This was not an easy task considering it has a strong taste but the problem was solved by making homemade ice cream.  Birthdays will never be the same!

Nathaniel cannot have egg so I came across an egg-less ice cream recipe and made some changes so it would be compliant with SCD.   So here it is!

Banana-Honey SCD Ice Cream

2 Cups of Goat Yogurt

2 Cups of Goat Milk

1 Cup (or less) of honey

1 Mashed Ripe Banana

2 Tablespoons of fresh Beet Juice (Nate loves red & no you cannot taste the beets!)

I put all these ingredients together in my ice cream maker and out comes yummy ice cream.  I now use some of the ice cream to make smoothies to sneak in the yogurt that I want Nathaniel to eat.  What did we do without ice cream? (I will post picks after I make my next batch!)

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Help, My Child Is Stuck!

October 11th, 2010 1 comment »

I always love meeting different autistic children or hearing about them from their parents.  One of the most interesting things to me is to hear about what the child enjoys and ends up hyper-focusing on.  These motivators that many of our children will tend to get stuck on.  For my son it is fans, tornadoes, whirlpools…you get the idea.  Basically, anything that spins.  How wonderful!

There are other children out there who get stuck on numbers, colors, sounds, textures etc.  I used to think that these little quirks were pure evil and they needed to be eliminated.  They represented my son’s autism.  I imagined that if I could eliminate these “weird” behaviors, then he would seem less autistic.

I look at these motivations completely different now!  Instead of objects that need to be removed, I now look at them as open doors to teaching & building a relationship with my son.  Do you know how many things I can do with the mere concept of a fan!  I never knew how much learning could  come from things that spin, but let me tell you, we’re still finding great games all about fans, tornadoes, whirlpools and sprinklers.  I am learning more and more how to marry my son’s motivations with the goals I am trying to accomplish with him.  It is so much fun.

The wonderful part of marrying your child’s motivations with your goals is that the child has no idea that they are being stretched.  It is like meatloaf where you blend in tons of vegetables in the meat and the child has no idea that they are eating veggies.  They think it is just the meat that they love.  As he’s having fun in a game that I’ve created with him, we’re working on increased eye-contact, greater flexibility, increased attention span, communication and much more.

Let me give you a few examples that come to mind.  An obvious choice for an example would be Nate’s beloved fans.  Let’s say he is asking over and over for a fan.  Fan, fan, fan, fan, fan, fan…….. Can you hear him now?  The first thing I love to do is recommend that we draw one.  This then turns into me drawing a button that he has to push for it to “turn on”.  When he pushes the button it “turns on” and I blow air on him or perhaps we’ll both spin.  Together, we now have made his obsession come to life and he is no longer stuck on the house fans.  We are now engaged in a game where we both participate and change the settings of the fan that we drew.  It is a blast!

(Now guess who is more interesting than the fan?  Me!!!!!  I can outdo any fan, any day.  Just try me!)

When it comes to learning to count, what do we use?  Fans!!!  Lots of fans and we count them together.  One idea that we are about to introduce is the alphabet fans.  (Just a cardboard circle with cardboard fan blades that I will attach to spin.)  When they spin I will make the sound of the letter that is attached to the center of the fan.  We can even act like the fan and spin together making the same sound.  Together we could have an interactive game of “lets find pieces of a cardboard fan & help put the fan together”.  If I am working on eye contact I can draw a fan on my forehead between my eyes with eyeliner.  As I said before, the opportunities are limitless.

Fans are now a really fun learning tool and I am no longer struggling to remove this obsession.  Nathaniel is learning and we’re having fun building a relationship.  How awesome!!

Learning this has been such a key to the whole Son-Rise process with my wonderful son.  Nathaniel goes in and out of being interested in different objects.  Once you think you have all these creative ideas for fans he switches on you and has a different motivation.  What will it be next?   A new motivation and a new open door for learning, interacting and growing together!  His quirky obsessions have made my life so much more interesting and fun!  I am living the dream!!

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